Finding Community and Connection in the Face of Dementia

Paul* and Barb* were passionate travelers who were about to retire from their careers. However, Barb began noticing some changes in Paul's behavior. Paul started seeing things that weren't there and forgetting things he used to remember easily. As an avid carpenter, Paul's work started showing large gaps and uneven lines, which was unlike his usual perfectionist self. After a few months, Paul was diagnosed with Lewy Body Dementia by his neurologist. Barb had to take care of Paul all the time, as he would often wander around the neighborhood without letting her know. Traveling also became challenging for them, as the change in environment made things worse for Paul.

One of Barb's friends suggested she call Hospice SLO, which provides non-medical volunteer respite services for people with chronic illnesses that limit their independence or cause their caregivers to be unable to take time for themselves. Barb met with Hospice SLO's care manager, who helped her create a plan to access community care and education and learn how to cope with this new reality.

Barb attended Hospice SLO's Dementia and Anticipatory Grief support group in person and the caregiver support group on Zoom. She was also connected to other area resources to help provide respite, in addition to a volunteer who provides up to 4 hours of respite so Barb can take a walk, run errands, or take time for her healthcare needs.

Hospice SLO's care manager stays in touch regularly, and Barb knows she can call with questions or concerns and has a person to talk to right away.

*Client names and photos changed to preserve their privacy.